On 26 February, Rare Disease Day is being held again. Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the national level.

Nearly half a million Europeans live with a rare cancer. Despite the rarity of each individual cancer type, around 200 clinically different rare cancers represent in total about 20% of all cancer cases, including all cancers in children.
Posted on the 18th February 2010
Cancer: Thriving and Surviving
Do you want to learn how to improve your quality of life after having had cancer?
Then sign up to Cancer: Thriving and Surviving, a new free online self-management course for people with cancer.
The Cancer: Thriving and Surviving Workshop and Study is a highly interactive, online small-group workshop designed to give you ways to make your life less stressful and more rewarding, and to give you tools to take care of your health.
Find out more at: https://macmillancancersupport.stanford.edu
Posted on the 8th February 2010
Network welcomes Network Support Group Development Manager
The Rosemere Cancer Foundation has funded a new post which is the first of it’s kind in the country. Donna Sheridan has been recruited to increase the number of cancer patient support groups across the Lancashire and South Cumbria Cancer Network. She has already been busy contacting Clinical Nurse Specialists within the Network to identify where there is a need for support groups. She will encourage the development of the groups to become self sustaining over time. Donna feels very passionate about the role and added it is an essential part of the patient pathway.
If you are interested in setting up a support group you can contact Donna at the Lancashire and South Cumbria Cancer Network on Tel. 01772 647062 or Mobile 07508 375679 or e mail her at
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.
Posted on the 13th January 2010
National Cancer Director recognised in New Years Honours
The 2010 New Year Honours List has been published, recognising outstanding achievement and service across the whole of the United Kingdom. Included in the honours is Professor Mike Richards, National Cancer Director.
Professor Richards received a knighthood for his contribution to health and is responsible for developing the National Cancer Plan and the Cancer Reform Strategy.
Posted on the 6th Januaruy 2010
The aim of Cervical Cancer Prevention Week is to increase awareness of cervical cancer and how to prevent it.
Cervical cancer is a preventable disease through cervical screening and the HPV vaccination programme. Despite this last year 20% of women did not take up their invitation for cervical screening. In addition, only 50% of older girls offered the HPV vaccine have elected to have this potentially life saving jab.
Posted on the 5th January 2010
NCRI seeks new patients and members of the public
The National Cancer Research Institute are looking to recruit patients and members of the public to join NCRI Clinical Studies Groups where new ideas for cancer research are developed.
The aim is to help NCRI understand the views and interests of patients and the public on a range of cancer research issues.
Posted on the 20th December 2009